My Endometriosis Story

As March is Endometriosis Awareness Month, I wanted to share my story and hopefully raise awareness over the years to ensure that diagnosis is hopefully done much sooner and people don't feel alone when suffering with the condition.

Now, as everyone with endometriosis or any other medical condition, it's not a straightforward story. Everyone's journey is very different and the symptoms they suffer can be similar but also different; for me, after finding out the diagnosis, it answered a lot of questions and made things from growing up a lot clearer.

January 2020

The start of my true journey was in January 2020; a routine out of hours doctors appointment for what I believed was a water infection and to be given antibiotics for the second time since Christmas soon led to a trip to a week of confusion, trips to the hospital and finally be given a diagnosis.

One Wednesday afternoon I started to feel queasy, I actually thought I had travel sickness, not sure why as I never suffer with this. This feeling only got stronger and stronger, then a few days later I started to feel cramping in my lower abdomen, my period wasn't due for another week. Confusing to say the least! I'd gone from taking paracetamol to ibuprofen and then nurofen and nothing would take the pain away. I even grabbed myself some cranberry juice and powder to add to drinks to help with cystitis. Annoyingly, I was meant to be going out on a works do that night but instead I ended up going home and curling into a ball in severe pain.

The next morning (Saturday), I booked in to see an out of hours doctor. He checked me thoroughly and was concerned that I had appendicitis, the doctor rang the hospital and got me a place on the ward instead of having to sit in A&E hours on end. I'm not going to lie, I started to panic but off I went.

After having my bloods taken and a urine sample tested, I was informed that everything had come back clear and to book in for an ultrasound in two days time. The pain got worse, co-codamol was next up in line to try; yeah you guessed it, it didn't work.

Monday came around and I spent the most of my day off in hospital waiting rooms; but an ultrasound and internal scan later, I was informed nothing was wrong with me and to take painkillers if I felt like the pain was unbearable. I left feeling very confused, how can I go from being informed I had an appendicitis to there was absolutely nothing wrong with me?

Fast forward a couple of days later and the pain was still there with the added sciatica down my right leg. Something didn't sit right with me and it was time I went back to the doctors, this time around I requested a female doctor as I felt like I would me more comfortable describing my issues. She was lovely, she sat and listened to me, she actually turned her chair around and looked at me whilst I was speaking and didn't type on her computer until I had finished explaining everything. I was then informed that the hospital had put endometriosis on my notes and then tell me there wasn't anything wrong with me.

She talked me through the condition, even if it didn't fully sink in and then prescribed me with some strong tablets, mefenamic acid. These aren't for everyone, before asking your doctor for these, you must sit down with them and explain your symptoms and they will tell you what will work best for you! I also had the option to be referred to a specialist, which I agreed to a few days later.

I was so lucky that I had seen a doctor who was ready to listen to me and felt like she wanted to help. Sadly, it can take up to seven years if not more to be diagnosed with the condition and I seriously put my hands up to you all who have gone that long without being listened to. You are absolute Queens!

Here's where my timeline suddenly alters.

March 2019 

The month where the symptoms hit me like a tonne of bricks and I was not ready for the physical and mental pain this would take me on.

I've always suffered with painful period pains on the day of my period, it's what I've been used to for years on end but this pain was something I've never experienced before. It may sound weird, but I could always curl up in a ball on lay on my front with my knees pulled up to my chest and managed shut off from the pain. Not this time! I was bent over double, rocking back and forth, crying my eyes out and no matter what painkiller I tried or the amount of wheat bags and hot water bottles I used, the pain would not go away. Now, I've never been in childbirth, but I honestly feel like the pain I was experiencing were that of contractions, there's no other way I can describe it. It got that bad, I was so close to calling an ambulance, the only thing that stopped me was the fact I was suffering with period pain and that's a bit pathetic really.

This went on for months, people close to me told me to ring the doctors, I just felt like I would be wasting there time so decided to monitor it. I would say nine or 10 of the last 12 months I've suffered.

However, the pain I had in January is something I've never experienced before! I wouldn't want to wish it on anybody, not even my enemy (I actually don't have any enemies.)

January - February 2020

I told you my story would be all over the place.

Following my diagnosis and speaking to those close to me, I decided it was time that I did a bit of research as I honestly didn't know anything!

The pain did fade away, I could feel a small constant rumbling but not enough to need painkillers. Lucky huh? Yeah you could say, but the queasiness returned and well, my stomach ballooned to three times the size. It was that bad I couldn't fit into any of my clothes, all I could wear for two weeks were leggings, tights where the waistband was under my stomach as let's face it, it wasn't sucking that bad boy in and baggy jumpers or oversized dresses. It was horrible!

March 2020

Here we are, back to the evening where I'm writing this blog post. Honestly, I could probably write a book on the past year; there's so much more that I want to say but I feel like this blog post is enough for starters. I'm still learning about endometriosis, but one thing I do know is that you are not alone! It may feel isolating, I can promise you that there are other women out there going through the same condition, they may not have the exact same symptoms but the same things will be going through their head.

I will continue to do blog posts on endometriosis, I don't want anyone to feel like they're alone! I am just an email or message on Twitter or Instagram away if you feel like you need someone to talk to!

Please find some useful links below if you need someone professional to talk to!

Alice xxx